Tuesday, August 07, 2007

Post-Op Update and The MDA

I had my post-op appointment with my RE yesterday. It went well. The polyp tested benign so that was good. In fact, it tested as not a polyp at all but as endometrial lining tissue. I asked if that meant it was part of the endometriosis because I am clueless. Turns out that it tested as part of the lining of the uterus. Oh well. It was big and bulbous and looked like a polyp to my doctor and now my uterus is all clean and free of outsiders and interlopers.

We discussed what’s next. When I get my next period, I am to call the clinic and set up an office visit to get some Clomid. I am going to try a couple of cycles on Clomid and see what transpires. While that is happening, I need to be working my butt off. Literally. I need to lose weight because I am back to a BMI that is embarrassing and this clinic will not allow me to use injectables while carrying this particular weight and BMI. We’re still not sure we want to use injectables but we would like to have options if the Clomid doesn’t work. My RE did say that should using Clomid or injectables result in 3 or more follicles, they would cancel the cycle right away and advise us to not proceed on our own, romantically speaking. She said twins, in her opinion, would be a respectable result in her opinion but beyond that, multiples are not a desired result.
Miss Zoot is raising money for her local MDA. Please go to her site and help her meet her goal. She was nominated by someone to raise money for this worthy cause and is not very familiar with the Muscular Dystrophy Association. She asked me to write something that details who they are and why they are so important to me and my husband. Here is my attempt.

When we had been married 6 months, my husband was diagnosed with FSH Muscular Dystrophy. He had had it his whole life but it had most likely manifested at puberty. There are over 40 different kinds of Muscular Dystrophy and they affect all kinds of people. Thankfully, the kind my husband has is not life threatening though it has affected his quality of life. When Bob was diagnosed, we knew nothing about Muscular Dystrophy other than it was the disease that had the Labor Day Telethon behind it. At his diagnosis, we were directed to The Muscular Dystrophy Association. I am so glad we were. (Before I proceed any further, please let me say that Muscular Dystrophy is NOT the same thing as Multiple Sclerosis. Bob is FOREVER being told that so-and-so has MS or so-and-so gave money to MS. MD and MS is NOT the same thing.)

Anyway, once we hooked up with the MDA, we didn’t feel so alone. What MDA did for us was immeasurable. They put Bob in touch with the local clinic. He goes in once a year to see a specialist in regards to his particular form of MD. They also loaned him an electric wheelchair until my insurance benefits kicked in and we could get a new one. Then they helped cover the cost of the co-pay. They also cover maintenance and battery costs of the wheelchair every year. These are things we could not afford on our own. They host a support group for people suffering from the same type of MD that Bob has. This group meets monthly and has been invaluable in helping us get through the hard stuff. We have also met other people who have other kinds of MD and while our issues may be different, we can all learn from each other.

We have helped MDA raise funds by working at lock-ups, walking, working at the annual telethon, and helping out at Harley rides. We love our local MDA. The people that work there are dedicated, kind, loving, and helpful. They know us by face and name and always greet us with smiles and exclamation of our last name when we walk in. We love the MDA and all they stand for. The hardest thing about working with the MDA and getting to know people with MD is watching the progression of the disease in the people we have come to love. It is especially hard to watch the kids go from running, to using a walker, to using a wheelchair, and finally not seeing them at all because they’ve passed away. That is why we work so hard to raise funds for MD. We are not as concerned about Bob and his form of MD because it’s non-lethal. We do care about all the kids we know with Duchene’s MD and all the others we know with ALS and we want to fund research that will find the cure for these horrible diseases.

Thanks Zoot! Good Luck!

1 comment:

Krystle said...

Wow, very interesting! Why can't some of these diseases or physical problems, vanish?